Patient Resources

Information about the UK ATTR Amyloidosis Patients Association (UKAPTA)

The UK National Amyloidosis Centre Amyloidosis Awareness Programme has provided extensive patient information and support since 2013. Resources of interest to patients with ATTR amyloidosis include:

NAC resources:

Information

Patient information leaflets/ newsletters

FAQs

Patient information website

Support

Online patient support forum

Local support groups

Other resources

International conferences

Pharmaceutical companies developing/marketing new drugs for ATTR amyloidosis

Patient organisations worldwide