The NAC is a highly specialised NHS clinical service funded by NHS England to provide a specialist clinical service for amyloidosis patients throughout the UK. It is the only specialist amyloidosis centre in the country and has been… Read More
Patients in the UK require a physician’s referral to the NAC. Information for referring physicians is available here. For questions regarding appointments contact: Mr Ramon Lamarca Tel: 020 7433 2813 r.lamarca@ucl.ac.uk Overseas patients The Royal Free Hospital and… Read More
The NAC clinical evaluation usually takes 1 -2 days, and hospital or hotel overnight accommodation can be arranged when necessary. It is recommended that you bring a family member or friend with you if possible. There is a… Read More
The NAC is part of the University College London (UCL) Division of Medicine and is situated at the Royal Free Hospital in Hampstead, London. Directions are available here.
There are several ongoing trials taking place at the NAC. See here for more information. If you are interested in participating in a trial, ask your doctor whether you are eligible when you attend your appointment at the… Read More
The waiting time for an NAC appointment is an average of 2/3 weeks from when the referral letter is received at the NAC, not from the date on the referral letter.
Symptoms of hereditary ATTR amyloidosis may appear as early as age 20, or as late as age 80. Age of onset is usually quite consistent within families. The TTR gene mutation that most commonly causes hereditary ATTR amyloidosis… Read More
Hereditary ATTR amyloidosis is a very rare disease. The most common type, associated with the Val30Met mutation, is thought to affect about 10,000 people in the whole world. It has hitherto clearly been by far the most commonly recognised form of… Read More
Hereditary ATTR amyloidosis runs in families. It may be inherited either from the patient’s mother or from the patient’s father. People with hereditary ATTR amyloidosis are born with a mutation (alteration) in the TTR gene that causes the… Read More
Coranovirus Update
Information about COVID-9 (corona) for patients with ATTR amyloidosis is available on the National Amyloidosis Centre website – see here.
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Archives: FAQs
What is the National Amyloidosis Centre (NAC)?
Updated on March 20, 2018 by miriam
The NAC is a highly specialised NHS clinical service funded by NHS England to provide a specialist clinical service for amyloidosis patients throughout the UK. It is the only specialist amyloidosis centre in the country and has been… Read More
How do I arrange an evaluation at the NAC?
Posted on January 16, 2018 by miriam
Patients in the UK require a physician’s referral to the NAC. Information for referring physicians is available here. For questions regarding appointments contact: Mr Ramon Lamarca Tel: 020 7433 2813 r.lamarca@ucl.ac.uk Overseas patients The Royal Free Hospital and… Read More
What should I expect at the NAC clinical evaluation?
Updated on March 20, 2018 by miriam
The NAC clinical evaluation usually takes 1 -2 days, and hospital or hotel overnight accommodation can be arranged when necessary. It is recommended that you bring a family member or friend with you if possible. There is a… Read More
Where is the NAC?
Posted on January 16, 2018 by miriam
The NAC is part of the University College London (UCL) Division of Medicine and is situated at the Royal Free Hospital in Hampstead, London. Directions are available here.
Am I eligible to participate in a clinical trial?
Posted on January 16, 2018 by miriam
There are several ongoing trials taking place at the NAC. See here for more information. If you are interested in participating in a trial, ask your doctor whether you are eligible when you attend your appointment at the… Read More
How long are waiting times for NAC appointments?
Posted on January 16, 2018 by miriam
The waiting time for an NAC appointment is an average of 2/3 weeks from when the referral letter is received at the NAC, not from the date on the referral letter.
How can I support amyloidosis research at the NAC?
Updated on February 12, 2018 by miriam
For information on donations and fundraising for the UCL Amyloidosis Research Fund, see here.
When do hereditary ATTR amyloidosis symptoms appear?
Updated on March 20, 2018 by miriam
Symptoms of hereditary ATTR amyloidosis may appear as early as age 20, or as late as age 80. Age of onset is usually quite consistent within families. The TTR gene mutation that most commonly causes hereditary ATTR amyloidosis… Read More
How common is hereditary ATTR amyloidosis?
Updated on March 20, 2018 by miriam
Hereditary ATTR amyloidosis is a very rare disease. The most common type, associated with the Val30Met mutation, is thought to affect about 10,000 people in the whole world. It has hitherto clearly been by far the most commonly recognised form of… Read More
Who gets hereditary ATTR amyloidosis?
Updated on March 20, 2018 by miriam
Hereditary ATTR amyloidosis runs in families. It may be inherited either from the patient’s mother or from the patient’s father. People with hereditary ATTR amyloidosis are born with a mutation (alteration) in the TTR gene that causes the… Read More
Coranovirus Update
Information about COVID-9 (corona) for patients with ATTR amyloidosis is available on the National Amyloidosis Centre website – see here.