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Patient Resources
Information about the UK ATTR Amyloidosis Patients Association (UKAPTA)
The UK National Amyloidosis Centre Amyloidosis Awareness Programme has provided extensive patient information and support since 2013. Resources of interest to patients with ATTR amyloidosis include:
NAC resources:
Information
Patient information leaflets/ newsletters
FAQs
Patient information website
Support
Online patient support forum
Local support groups
Other resources
International conferences
Pharmaceutical companies developing/marketing new drugs for ATTR amyloidosis
Patient organisations worldwide
Coronavirus Update
Information about COVID-19 (corona) for patients with ATTR amyloidosis is available on the National Amyloidosis Centre website – see here.